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How do nurses cope with the emotions of caring for terminal patients?

March 26, 2010                                   GUEST POST by Jason Bankert

It is the common belief that nurses are the care givers and thus are more compassionate than physicians who are often perceived as hard and emotionless.  The Intensive Care Unit (ICU) can be emotionally draining as many patients are in critical condition or are terminal. The care of terminally ill patients is called end of life care or EOLC.  How do health care professionals, such as physicians and nurses cope with the emotional burden of terminal illness in the ICU and how do there perception, treatment and communication involving terminal ill patients differ?  These different perspectives impact physician-nurse collaboration as well as their satisfaction with the quality of EOLC (Hamric and Blackhall 2007).  

   In a recent study conducted in the ICUs of a rural hospital in Southwestern Virginia and an urban hospital in Eastern Virginia, investigators examined these questions to provide an insight on how these different perspectives on EOLC ultimately impacts patient care and what interventions can be taken to reduce moral distress and improve physician-nurse collaboration (Hamric and Blackhall 2007).  The study, based on survey responses, showed that RNs experience more moral distress during EOLC than do physicians, even though both groups identify the situation as morally distressful (such as aggressive treatment as requested from a family member when both groups feel the treatment is unnecessary (Hamric and Blackhall 2007).  As a result, these nurses are less content with their environment or the perception of the quality of care given to the terminal patient.  This higher emotional burden on nurses may be the result of their job.  It is the nurses who provide the majority of the bedside care during EOLC and are in contact with the patient more often than physicians.  Also, nurses lack finally authority over the treatment options implemented by physicians. Even though nurses may disagree with the way physicians communicate prognosis and diagnosis, they feel that they have no say in the final decisions regarding patient treatment during EOLC. 

The emotional environment is more important for nurses who are in contact with the patient more often than physicians, providing most of the daily beside care tasks (Hamric and Blackhall 2007).  Therefore, it is necessary to improve this environment to ultimately improve the overall quality of patient care.  The best care in the ICU occurs when nurses are active participants in diagnosis and treatment decisions and are active in communicating with patients and families alongside physicians (Hamric and Blackhall 2007).  In order to provide a environment where nurses can be proactive in the patient care, special attention and policy needs to be implemented to increase physician awareness of the extra emotional burden experienced by nurses and respect their input in regards to EOLC.  Equally important is the improvement of physician-nurse collaboration. This may be accomplished by promoting open communication about the different perspectives of EOLC through team meetings, individual meetings with chief staff members and conferences involving staff and specialists from other institutions. 

Hamric, A. B., L.J. Blackhall.  (2007). Nurse-physician perspectives on the care of dying patients in intensive care units: collaboration, moral distress, and ethical climate.  Critical Care Medicine, 35, 422-429.  Retrieved from: http://www.ncbi.nlm.nih.gov/pubmed/17205001

What do you think about tobacco settlement dollars?

March1, 2011

It is a fascinating history filling volumes of research journals and books and ledgers… The tobacco settlement… It came to my attention again today as I was reading about Pennsylvania’s adult basic health insurance program.

Mostly, in the past several days, I’ve heard sound bites about the program shutting down and leaving Pennsylvanians uninsured. The shutdown in the stories I’ve heard seemed to be linked to state budgets and all that is going on there. Today, I had a moment to explore more about these soundbites and learned that…the program began under Governor Tom Ridge who used the State’s tobacco settlement funds [http://onevoicetulsa.com/index.php?ht=display/ContentDetails/i/4424680].

The tobacco settlement was designed to provide states with funds to address increased health care costs related to tobacco use…smoking. This was to include cessation programs as well [http://www.tobaccofreekids.org/what_we_do/state_local/tobacco_settlement/].

One might ask how we get from the the latter to the former? We all share higher health care costs linked to smoking…whether or not we smoke or have smoked. So perhaps it was a creative and even equitable program that the former governor introduced…

What if your doctor told you that not taking your medication could really cost you in the long run?

February 25, 2011

There is a lot of talk about too much pill-popping to address our health. Lots of stories go around about patients asking doctors for prescriptions. But the other side of the story is that almost half of us who receive prescriptions do not take them. And about 40% of us who do NOT even have to pay for our prescriptions because they are covered by insurance do not follow the doctor’s orders…

Drs. David Cutler and Wendy Everett discuss this dilemma in the article, ‘Thinking outside the pillbox — Medication adherence as a priority for health care reform’. [http://www.nejm.org/doi/full/10.1056/NEJMp1002305] Their analysis considers the fact that not taking the medications our doctors prescribe probably leads to lower quality of  life and may shorten the number of years we live. They discuss the estimation that 89,000 Americans who have been prescribed high blood pressure medications and do not take it die prematurely.

And, not taking those prescribed medications…too often results in hospitalization that could have been avoided…adding up to $100 billion… How is that for a goal in talking about health and health care reform? Take your medication to avoid a costly alternative…time in the hospital.

Should those who educate our doctors include talk about cost consciousness?

February 24, 2011

In my piles of articles that I was sorting and filing today, I came across one written by Molly Cooke, a medical doctor. She published a piece in the New England Journal of Medicine [http://www.nejm.org/doi/full/10.1056/NEJMp0911502] that appeared in 2010, volume 362, pages 1253-1255. The article’s title is, ‘Cost consciousness in patient care — What is medical education’s responsibility?’

I was moved to print a copy of this article when it first came into my email on one of the many list serves to which I subscribe. I was reminded of why that was the case as I reread the contents. Dr. Cooke notes that while debate about costs of care has been a focus of society’s discourse relating to health for decades, medical education curricula seldom address how and when cost enters planning of diagnosis and treatment strategies.

Dr. Cooke addresses historical, philosophical, structural, and cultural explanations for this reality. One of the historical events relates to efforts for clinical pharmacists to guide doctors’ understanding about prescibing and testing. The ‘academic detailing’ veture, as it was labeled, made little difference in prescribing or other habits.

Dr. Cooke notes that doctors consider themselves to be patient advocates and, as such, want to focus on benefits for a patient, not the cost associated with accessing those benefits. Structurally, she describes an educational setting in which medical education students work in hospital settings where the primary goal is to get a patient out of the hospital. If discharge is the first aim, she believes that doctors learn to order any test they can to achieve that aim via evidence that a patient is ready to be let go. So, there is no time to learn about possible cost-effective approaches… Isn’t this a bit ironic? In the name of cost-saving, perform possibly unnecessary tests to discharge a patient sooner rather than later? If anyone has the data out there to show how that works out for the economic benefit of health care, pleasure share it…

How are asking these questions relating to health like a sleigh ride…?

February 13, 2011

Seven Springs… A horse drawn sleigh ride… There is something very spiritual about riding through falling snow deep into the woods. And it can almost seem as if you’re floating right into the horizon…

Questions about health and health care can be like that… They go beyond the focus on illness or disease. They often go to the horizon of working in health care… Nurses working with doctors… “What’s that like?” And doctors talking to patients.

Have you ever thought about what it would be like yourself to be a doctor? Imagine asking a doctor, “Does talking to patients make you nervous?” What about asking patients, “Do you have trouble making ends meet?” Or, “Do you need financial help?” 

In each of these cases, the way the question gets asked makes it hard to imagine that anyone could answer them honestly…   

Why would anyone become a doctor if he or she gets nervous thinking about talking to patients? Perhaps that isn’t the best way to think about it. Why wouldn’t anyone get nervous at the thought of talking to someone about something so important and so personal as their health?

If you were a doctor, how would you go about talking to your patients in ways that respect their religious beliefs? What about breaking bad news, like a cancer diagnosis–wouldn’t that make you nervous? Every conversation is a little bit like going forth into a snowstorm…counting on someone to guide the way but preparing to make the most of the trip…

Why did Dr. Oz introduce Dr. Nemeh on his show today?

February 2, 2011

Well, with all the winter weather slamming the nation, I thought a picture to remind us of spring was in order…

Dr. Oz discussed healing through faith on the show today [http://www.doctoroz.com/videos/man-faith-healer-pt-1]. This is one of my favorite topics in health communication. Dr. Oz introduced Issam Nemeh who was very comfortable answering all kinds of questions. For example, “Couldn’t the lung mass have really been a virus that cleared up on its own?” “A biopsy showed it to be a mass… It was there and then it wasn’t.”

My favorite phrase used several times during the show by several people, including the host and the guest–“it isn’t ‘either’ — ‘or’. It can be both” They were referring to…healing through faith and Western medicine…working together.

In ‘Talking about health’, Tina Harris tells the story of her brother when he was young and the years that her family dealt with his breathing difficulties. Her brother had many hospitalizations and saw many doctors over almost five years. During all of that time, they prayed for a healing of Ken. Then, the family found a doctor who shared their faith. The family prayed with him. The comfort they had based on the shared faith guided them to feel comfortable with scheduling a surgery with the doctor, believing that God would use the doctor’s own faith and skill to improve their son’s health. Then, the miracle they had been praying for happened. Ken was healed. He no longer needed surgery…and as Tina said, her brother sings the Lord’s praises every week in church…

Tina and I have explored the topic of the role of religious faith for beliefs about genes and health. We find, of course, that some people do not believe in God. Religious faith is a strongly held value. In a nation founded on religious freedom and among citizens who largely claim to be religious, openly declaring one’s own lack of religious faith is not a declaration likely to be done with little thought behind it. But expressing belief in God is also not a declaration done with little thought, and finding a way to make a space for either in conversations about health is important…to health and healing…

What did Michelle Obama have to say about WalMart today?

January 20, 2011

Michelle Obama spoke today standing in front of fresh produce at a WalMart. She talked about the initiative that WalMart will undertake to make healthy food more accessible.

http://www.youtube.com/watch?v=TwMsh8vaYvE 

WalMart will reduce the sodium in their products and get rid of products with trans fats. They will lower the prices for fresh fruits and vegetables. In short, they will work to make it possible for more of us to afford to eat healthy… Let’s hope it is a model that others follow…

How do we talk about pain?

January 18, 2011

Have you ever been asked, ‘On a scale of 1 to 10, where 10 is the most, how bad is your pain?’ I’ve been asked that question. I have heard others be asked that question. I have even seen it in prime time shows. Is it just me, or is that a hard question to answer?

I took a quick look online to see what kind of research there might be about ‘taling about pain.’ I found very little published research. There is research about pediatric pain and getting kids to use pictures of faces to tell about their pain. Then I found an article about developing a measure of neuropathic pain [http://www.meduniwien.ac.at/phd-iai/fileadmin/ISMED/Literaturhinweise/Bennett_LANSS_Pain_2001_92.pdf]. It has the kind of things that I would imagine being more helpful both for making treatment recommendations and to help a patient be able to answer. It asks whether the pain feels like pin pricks, for example. A doctor takes all of the patient’s answers to add up for a total pain score. This seems to be a good way to talk about pain when working to manage it…

What happens when mothers talk to daughters about HPV vaccines?

January 6, 2011

This will not be the first time I have focused on HPV… In fact,  about a year ago, I posted on this topic. Today, I want to mention that Janice Krieger and some of her colleagues at Ohio State published an article in Human Communication Research about the importance of mothers talking to daughters about HPV [http://onlinelibrary.wiley.com/doi/10.1111/j.1468-2958.2010.01395.x/abstract]. Another article published in the Spring of 2010 has similar conclusions [http://pediatrics.aappublications.org/cgi/content/abstract/125/5/982].

Mothers’ confidence about talking to their daughters about HPV — believing that they had knowledge and could answer their daughter’s questions — had an important effect on the likelihood of talking. Also, mothers’ belief that the HPV vaccine is an effective response in preventing cervical cancer motivated them to have these conversations.  Both findings emphasize the need to communicate about HPV and the HPV vaccine to form knowledge. The findings,  as the authors note, also bring to light a need to observe these actual conversations and their effects. For example, mothers may talk about HPV as being a common and easily transmissible virus. Or, mothers might say that HPV causes cervical cancer. The latter might lead daughters to assume that brothers and male friends are not at risk for HPV. That would be an inaccurate conclusion.  

puzzlepic3I have a granddaughter who is seven years old. She happens to live in Texas. This is one of the states that considered making the HPV vaccine mandatory in order to be in public school [http://politifact.com/texas/statements/2010/feb/06/rick-perry/perry-says-hpv-vaccine-he-mandated-would-have-been/]. It didn’t happen …  for various reasons. For one, the vaccine is really a series of three shots —  not one. The cost for the three shots is about three hundred dollars [http://cancer.about.com/od/hp1/f/hpvvaccinecost.htm]. Time and money… and debate about sexuality.. and religion… then there is the belief that government should not mandate anything… How do we communicate strategically to build mothers’ confidence to talk about those things? And what do we say to boys as well?

http://www.nytimes.com/2010/10/29/us/29vaccine.html

Have you gotten your flu shot?

December 6, 2010

img_22512A couple of weeks before setting out on the Thanksgiving trip to hike in the New River Gorge area and dine with family at a bistro in Asheville, North Carolina, John and I got our flu shots. This year, the shot combines the swine flu shot with the ‘regular’ flu shot so that you will not be offered two…but instead get two for the price of one. I hadn’t paid much attention to this fact until arriving for the appointment to get the shot.

I have adopted the view that getting a flu shot is something I should do, even though I find that end up with a bruised arm that I can’t sleep on for a couple of days. I do it because I teach a lot of college students who come and go from their hometowns across the northeast and beyond, and they work in area establishments with many customers. So, protecting me and protecting them…the public good angle of public health discussed in the book.

How does informed content about the flu vaccine work for you when you get the flu shot? For me, it went like this. Here is a form for your to read whenever you have time and want to. Are you allergic to eggs?   

img_0291Vaccine information sheets are not quite the same as informed consent documents for surgery. We don’t have to sign a vaccine information sheet. Why? I suppose because so often, shots are being given to lots of people in a small span of time.

Perhaps because shots are given by so many different types of health care staff and a wide range of questions might be asked, making it hard to provide training for responses. And, shots are supposed to benefit the public in general. So, identifying the possible risk of receiving a shot–such as being allergic to eggs and the flu vaccine–becomes a shorthand method of informed consent.

Recently, there has been some effort to encourage those with egg allergies to talk with their doctors about the flu vaccine. An article on Science Daily discusses the issues [http://www.sciencedaily.com/releases/2010/10/101018121440.htm]. Take a look…

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